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Updated 22 August, 2002.
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Wednesday 21st August 2002 It is hard to believe nearly 3 months has passed. It is nearly MRI time again. This Friday (23rd August) Megan will submerge into the infamous tunnel at the RCH and emerge about one hour later with hopefully a great looking scan. We won't get the actual results of her scan until the Wednesday after (28th August) so it will be quite a few tense days in the house. The nerves are starting to kick in now, in anticipation of her upcoming MRI. We will keep you posted with her results.
So what else has been happening? Megan is developing into a beautiful little girl with a gorgeous personality. Physically, she is still struggling a little, with her major achievements being able to roll over and sit unassisted for short periods of time. Her smiles are much more frequent and shine like a wonderful star. I may be biased, but she is just our precious princess (who can spot a compliment directed her way from a mile away!) who had a very tough start to her life, but it hasn't made her worse for it. For those who knew her when she was a bub, you will be pleased to know her best asset, her lovely eyelashes (some may think her rolly poley legs are her best asset - which she also still has!) are still long and luscious and frame her beautiful bright blue eyes.
I have taken a few snaps of Megan at her Early Intervention therapy with RVIB (a wonderful organisation - who have taken her a long way). Enjoy!
Wednesday 22nd May 2002 Megan had her scan yesterday and today we got the results. ALL CLEAR!!!! We are now a year past the removal of her tumour, and still no sign of it ever returning. We will continue to have 3 monthly MRI's for another year, and assuming all is well, then move on to 6 monthly MRI's from there. Although we were nearly expecting to be told all was good, it is still an incredibly nerve-racking time and you can't help but run through the "What if's". It is such a relief to know the tumour is still gone. Megan fought so hard, she deserves these good fortunes now. We also received results of an EEG Megan had about 3 weeks ago. She has just begun the weaning up process of Lamictal and the EEG was to see if this was helping with the activity on her EEG. Although her EEG is still considered abnormal there were obvious improvements in this last EEG. We are only currently half way through the weaning process, so we can only hope things will continue to improve. Thankyou to everyone who wished Megan well. She has come through for us again!
Sunday 19th May 2002 On Tuesday this week (21st May) Megan will have an MRI scan of her brain and spine. This scan marks the occasion of one year since removal of her tumour (which was actually on the 29th of April). It is hard to believe how far removed we are today from one year ago. We will get the results of the scan on Wednesday morning, when we meet with Wirginia Maixner, Megan's neurosurgeon. As soon as we are able, we will update you all with, hopefully good, news. Please keep Megan in your thoughts and prayers, and start crossing all applicable body parts for another clean scan. Thankyou to everyone out there who has continued to support Megan throughout her journey. Wednesday 17th April 2002 Well.....over 2 months have passed since the last update. This is a definite case of no news is good news. In actual fact, no news is nearly great news. During the month of March, Megan rolled over! Yes...you read right - the princess can roll over!!!
We took the opportunity at the end of March to go on a family holiday. As last year was fairly harrowing for us, and particularly Megan, and we all hope this year is quite the opposite, we figured that we more than deserved a holiday. So we packed the car up and we drove to sunny Queensland. As you can see from the pictures, everyone, especially big sister Casey, had a great time!
This month has seen Easter come and go and Casey turn 3. Megan is just beginning to sit for periods of up to 30 seconds without support. She seems to improve every day, she really is an incredibly special little girl (even though I am biased as her mummy). Prior to Megan rolling over and this new found ability to sit, we started taking her to an Osteopath (Hillside Clinic for those interested) and as far as I can notice, it is since this new therapy has started that we have seen these new major developments in Megan's gross motor skills. You make the connection.
Next month, on May 21st, Megan will have a brain and spinal MRI, with the results to follow the next day. On the 29th of this month it will be one year since the day Wirginia Maixner (the neurosurgeon) performed a 17 hour miracle and gave our little girl a chance. It is hard to believe it was a year ago that we kissed her good luck and were left to wait for what we believed would be close to a 24 hour procedure to hear the fate of our second child. Today we seem so far away from that day. Life is good. Wednesday 6th February 2002 Megan's MRI scan was CLEAR!!! No evidence of recurrent tumour!!! One year on and this very special little girl continues to be an inspiration! Sunday 3rd February 2002 Megan will have her 3 monthly MRI (9 months post Op) tomorrow with the results due on Wednesday. Please cross all applicable body parts!
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